celebrities with bicuspid aortic valve

Thanks for the very insightful post, and for taking the time to reply to everyone here. I dont think theres a way to predict the future in this circumstance. In some cases a particular arrhythmia that is responsible for your feelings of palpitations or light-headedness could be identified.and options for treatment could be presented. After an MRI, Ive been diagnosed with BAV and mild aortic coarctation. I am a keen weightlifter, which is the basis of this post. In patients needing valve replacement because of stenosis or regurgitation, the aorta should be repaired or replaced if the aortic diameter exceeds 4.5 cm. Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. Im paranoid to exercise too much for fear that I will do damage to the valve. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. "I had to make lifestyle and diet changes, she said. I think its reasonable to think of things this way. Did you run? Thanks. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. BAV only has mild regurgitation. Thank you for what you do and for your responsiveness. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. Thanks for the infoI really appreciate what you,have to say. ( I was much worse though). and my valve is working quite well (mild aortic regurgitation). Am I crazy? Celebrities With Heart Disease - Celebrity Heart Health Survivors. I didnt get it.". Hi Sean, She advised us we should start to consider surgery but would follow up with us again in 3 months. Consensus guidelines are developed to be broadly applicable, but the guidelines may not be applicable in a given athlete patients circumstance. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. And, if so, how did things go? I dont know all of the important details. I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. And he never had any symptoms and played competitive soccer since he was 6. I have an OnX mechanical valve. This visit we were told it could be a few years before anything needs to be done. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. I realise that I will eventually need the valve replaced again and just hope that things go as well next time. Maybe a genewho knows. She said not until it gets to 5cm. A few hours after helping the woman, she began to experience chest aches, soreness in both arms, nausea and clammy skin. I would pose these questions to your doctor(s) since they are most familiar with the details of your situation. Dear Dr Creswell you seem to be such a kind cardiac surgeon to make yourself available in answering questions. "Women are the natural caregivers; we take care of everyone else under the sun," she says. that suffer from heart valve disease along with a link to the reference story about their heart valve disease and their Twitter handle can be found below: ), the famous American television anchor, suffers from, ), the Olympic Gold Medalist (Soccer) suffered from, ), a comedian and broadcaster, suffers from a. 2k erg test. I know I will need it replaced. There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. But if you have a bicuspid aortic valve, you only have two cusps. Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. She is afraid, I can understand that. Is this true that you wont be symptomatic with only mild AR? What should i do? I lifted weights for many years and spent almost all my life in physically demanding jobs. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. Alternatively, bicuspid aortic valve symptoms can appear during the first twenty years of life. Thank you so much for your clear explanations. 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? My son was diagnosed with BAV, by chance, when he was 7. New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. I will keep you posted. I would really like to know if I can (or shouldnt) push myself as hard as I used to. On Aug 30, 2017 I passed out at the gym and subsequently airlifted due a large abscess and valve dehisence and underwent another operation and now have a homograft. View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. I'm new to this group, so I'll be rather short. Many patients with surgery for BAV, even if it involves aortic root replacement, lead rather normal lives afterwards. Thus far shes had only minor bruising (shes 6ft and has a solid build). I have wife and two small boys, I wanna live to see my grandchildren. No pulmonary hypertension Bicuspid aortic valve is associated with abnormalities in the coronary artery anatomy in about 2% of patients, including anomalous origins of the coronary arteries and upwardly displaced coronary ostia. after surgery and was playing football again by September. Most people require treatment once symptoms develop. I currently lift reasonably heavy weights in the 8-12 rep range, including body weight excercises such as pull ups and push ups. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. All they said is dont really do weight where you can feel the strain in your neck ?!? May 10, 2010, 4:50 PM. Any guidelines? I continued playing hockey routinely until I was in my late twenties. Many people in your situation will eventually need operation for replacement of the valve or the aorta, but wed need a crystal ball to know about the future. Moderately dilated aortic root (max 46mm), mild ascending aortic dilatation. Thank you sincerely for your time and information. Normal great vessel size Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). And my wife is screaming at me every time I try to exercise :)). Youve got the right idea, though. Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); My sinus of valsalva is at 4.8 and my BAV is functional (discrete regurgitation). I am 6ft 3 . It sort of flutters open and shut. Tetyana. Needless to say, the diagnosis was quite overwhelming. No changes in regurgitation status (aortic regurgitation LVOT 19%); I dont know about the relative effectiveness of various ARBs used for this purpose. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? Consensus guidelines from the Proceedings of the 36th Bethesda Conference recommend: The first recommendation does not include the endurance sports. EKG and echocardiogram were done showing BAVD. Thank you so much for your explanations, Im 30 years old with BAV 2 instead of 3 leaflets since birth, doctors recommended me to have Echocardiography test each year and so. Thank you so much for all of this insightful information. Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. In addition to running, I also perform moderate to high intensity resistance (weight) training 5-6 times per week. In short, is it too early for me to start talking to a surgeon to identify available options? However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. Reply. I was training for a marathon when I was 62 years old and diagnosed with BAV with severe regurgitation. Not sure I have something specific to suggest for additional reading.and I dont know where to steer you about a knowledgeable trainer in the UK. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. To quickly review, individuals with BAV have an aortic valve with 2 unequalinstead of the usual 3 equal sizedleaflets. I dont believe this has been well studied. Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Zdenko . Bicuspid aortic valve. He loves sports and is wanting to do more and more. Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. This site complies with the HONcode standard for trustworthy health information. Is operation needed? This also assumes that there are no other cardiac issues or medical problems to consider. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. Again, thank you and bless you for taking the time to talk with us here! Could the changes in my LV be the result of the physiological, not the pathological change? The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. He also has minimal leakage at the valve aorta. I hadnt heard about the technique previously. Aortic dissection, a tear in the wall of the aorta. First, Id encourage you to follow your doctors advice. In your case, though, the infection might well influence the healing process. If so, youre far from alone. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. I am wondering if you know anything about these drugs and how they can impact aortic growth? Glad Ive found this website! Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. Adam has been featured by the American Heart Association and Medical News Today. I look forward to hearing from you. Others won't have symptoms until adulthood, if ever. Thank you to every doc and nurse on my team.". Hey would like to continue to be active but is worried about which procedure would be best for him. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. I would like to know more about your recovery timeline since you are so much further out from surgery than I amfor instance; how long before you could do long rides again; when could you do tempo efforts; start high heart rate intervals; and finally race again? Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." Get your act together, Columbus! That means it is a congenital heart defect. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. If 5% of them dissect, this means 313,914 people. Some people with bicuspid aortic valve will have symptoms in early childhood. Catch up on the years best movies, whether in theaters or now streaming at home. No LA, RA, RV, chamber dilation They call this type of heart attack the Widow Maker," she wrote. I think you understand the guidelines correctly. Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. Thank you for this blog! The surgery was a full success, and the valve is closing really well now. Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. Since my initial post i decided to call another pediatric cardiology hospital in our state, University of Michigan Pediatric Cardiology. If the valve does not close completely, blood can leak into the heart. I am perfectly happy to stick to the 10km max distance for races, but my key concern is that if I do run some faster training sessions then I might have a sudden death. I have a 15 year old son with a BAV, Aortic stenosis, Noderate regurgitation and dilatation of his ascending aorta. There are certainly athletes whove returned to their sports after valve (and aorta) repair/replacement. The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. Hi Larry I can tell my story. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. I am an having trouble seeing the difference in the ross procedure and the bioprospthetic valve replacement as far as benefits go? I have 4 children and a great wife. During that first month we recommend ample walking as the best form of exercise. The doctor said it wasnt serious, but that I should keep watch on it every year. The ST junction and ascending aorta are mildly dilated max 35mm. This can lead to stretching apart of the valve leaflets and leakage at the valve, known as regurgitation. I excercise 2-3 times a week, namely cardio and weight lifting. Do we have a choice with him only being 15??? So unfortunately it sounds like i am part of that grey area. On April 16, 1997, Arnold Schwarzenegger underwent elective heart surgery to replace a defective, congenital aortic heart valve. His exercise stress test on 8/5/16 was fine. It doesnt help that I am a nurse. I was wondering if you could give your opinion on my scenario. Thanks. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). Thanks very much for this Dr, it is really helpful to get someone elses opinion on the subject and Ill definitely raise those points with my cardiologist next time we meet. Aortic stenosis, the narrowing of the aortic valve. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. For those same patients, we recommending avoiding strenuous dynamic exercise line swimming, running, soccer, tennis, cross-country skiing, etc. 2012; 109:1632-1636. I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. Im not aware of studies explicitly about athletes after Ross procedure for BAV. . Arrhythmias may sometimes manifest many years after surgical repair of congenital heart defects. Would this have any affect on any of the results of the tests I have done (Echo, EKG, Chest Xray)? The flaps are called cusps. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. My question is: is it okay for me to participate in weight lifting with BAV? No enlargement of aorta or any other problems. Are there any things I can do now to help minimize my risk? Flaps of tissue on the valve open and close with each heartbeat. Bicuspid valve stenosis treatment involves surgery to replace the valve. Thanks in advance. Here is a link to a diagram that categorizes sports according to their dynamic and static components: http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png. Bicuspid aortic valve: A bicuspid aortic valve only has two leaflets, increasing the risk of circulatory problems and heart conditions. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. Rest pulse (70 bpm|50 bpm) I am concerned about removing the coronary arteries and re attaching them again etc. Holding breath during lifts valsalva). Bicuspid aortic valves are more common in men, but also affect women. To help correct the regurgitation, the cusps of the patients valve leaflets can be tailored, with the valve leaflets left in place. I knew none of this until a year ago. To the extent that any operation fixes the stenosis or regurgitation, we might expect better efficiency from the heart. I like to practice MTB and running competitively in local races. 1. A CT scan made the diagnosis. Thanks for sharing an update. Arnold Schwarzenegger (The Governator) - Heart Valve Replacement. I cant think like a nurse where hey is concerned. Ive starting going to the gym again and doing cardio with weights to tone up. Thank you very much for your thoughtful response. When you start seeing changes with regurgitation does it progress quickly? Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Im not sure theres enough information at hand to offer sound advice. I had surgery when I was 10 years old to replace my bav with a St.jude mechanical valve. Is it possible that the valve will get loose? Sounds like youre on the right track by getting things evaluated. Hope to hear back soon. They wont repair my aneurysm unless it was 55mm during surgery or 60mm before surgery. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. Males are affected 3:1 compared to females. Is that far fetched? As a consequence, these individuals develop earlier calcification of the valve leaflets, leading to narrowing, or stenosis. The plasma volume and the heart rate increase, while the systemic vascular resistance decreases throughout the first trimester and plateau about halfway through pregnancy [10]. After the first month, patients are generally allowed to return gradually to all of their previous activities. I dont know what to do .. There is a readable section related to BAV. Tachcardaia beetwen echo due that doctor couldent see clearly. In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. But neither of these procedures are durable for the long-term. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). Since I started running, I lost about 8 kg, my blood pressure decreased from 140/90 to 120/80-70. I had my AVR almost one year ago. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. Im wondering if you can advise me. This is such an interesting blog, I wish I had known of it sooner. A bicuspid aortic valve only has two of these leaflets. My family is pressuring me to quit strenuous cycling but I am thinking that switching to longer rides at lower heart rates would not accelerate valve wear or otherwise be bad for me. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. Thank you for the blog that addresses the athletes point of view, and feelings. He sees his cardiologist every year. November Cover Star Gal Gadot Is in a League of Her Own A First Look at Diana and Margaret Thatcher in The Crown Season Four Celebs Roast Trump in Rhyme for John Lithgows Trumpty Dumpty Book Brace Yourself for George Clooneys Apocalyptic Movie The Midnight Sky The Best Shows and Movies Streaming This October Inside Netflixs Latest Binge-able Escape, Emily in Paris The Crowns Young Stars on Prince Charles and Princess Di From the Archive: How Hollywood Sharks, Mafia Kingpins, and Cinematic Geniuses Shaped The Godfather Not a subscriber? document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. Currently, it is estimated that about 5% of those with bicuspid aortic valve disease will experience aortic dissection. Thank you for your time. Im in Philly today but Im from Central NY. Okay to wait? Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. Perhaps that will provide so e reassurance.

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